We’re a friendly, active group for people of working age who have Parkinson’s and otherwise known as the Edinburgh Young Parkinson’s Support Group, EYPSG. We understand what it’s like to be diagnosed with and to live with early onset Parkinson’s. Anyone of working age wherever they live is welcome as well as their partner, friends or family members.
We meet on the first Thursday of each month from 6.30pm. These get-togethers are in an informal, private function room reserved for our use by The Steading, 118-120 Biggar Road Edinburgh, EH10 7DU. Please note that there is a flight of stairs up to the room in the conservatory and no lift.
The meeting on 7th September will have a guest speaker: Gerry Gilmurray, Social Obligations Coordinator for SP Energy Networks. The remit is to ensure vulnerable customers are added to the Priority Services Register. Once added this will ensure that during a power cut, they can tailor the support customers need during this period and pro-actively keep them up to date where possible. Gerry will also promote additional services, which all come free of charge e.g. making customers’ homes as warm and as energy efficient as possible, offering home fire safety checks, offer Carers support etc. See leaflet for more info: Caring Network Social Obligations
We normally have a drink from the bar and some of us also have a bite to eat. It’s a chance to have a chat with fellow “Young Parkies” about ups and downs we may have in common. We have occasional guest speakers, outings and access to all Edinburgh Branch activities. It’s also an opportunity to learn about medical and lifestyle issues.
We run a closed Facebook page https://www.facebook.com/groups/eypsg/
Here are some quotes from members of the group about what it has meant to them.
YPG has helped me meet and share experiences with others living with Parkinsons
Before I discovered the YPG I seldom ate out, as I was very self-conscious of shaking while eating, however now I regularly eat out with fellow YPG members who are in the same boat as me.
I love the range of activities available via the charity/YPG, with my personal favourite being adaptive yoga sessions every Monday.
Through the YPG I have regained my confidence and have met and built up a great support network of friends.
To read about the 4th June 2020 meeting at which Joy Milne talked to the Group about her collaborative work on developing a smell-led approach to diagnosing Parkinson’s, see this News item.
You can read about the history of the Edinburgh Young Parkinson’s Support Group.