Hello ,
Please join Parkinson’s UK as we host a special online research event with Professor Suzanne Reeves, University College London, and colleagues in Scotland, on Wednesday 28 June 2023, at 2pm.
Why do hallucinations happen in Parkinson’s?
Current treatment and research opportunities for developing new treatments – including the ‘TOP HAT’ clinical trial recruiting now at sites across Scotland
When: Wednesday 28 June 2023, 2 – 3.30pm
Where: Online via Zoom. Please register on our Zoom registration page.
Hallucinations affect many people with Parkinson’s at some point and can be extremely distressing for patients and their families. Hallucinations and delusions can appear in both younger and older people in the earlier stages of the condition but are more common in people who’ve had Parkinson’s for a long time. There are some simple steps you can take to manage and reduce your hallucinations or delusions. But the medications available to manage these symptoms in people with Parkinson’s are severely limited.
What is the TOP HAT trial?
Parkinson’s UK is funding a large-scale clinical trial to investigate the potential of a drug called ondansetron in people with Parkinson’s or Dementia with Lewy bodies (DLB) who experience visual hallucinations.
Ondansetron is an anti-sickness drug that is already approved and in use in the UK, mainly to help reduce nausea in people undergoing cancer treatment. The drug first showed potential for treating visual hallucinations in Parkinson’s in the early 1990s.
The trial aims to recruit 306 people with Parkinson’s or DLB across England, Scotland and Wales. Sites in Edinburgh, Glasgow, Tayside and Aberdeen have recently opened, and all are looking for participants. You can read more about the study and find the contact details for the trial sites online.
Please join us to learn more about hallucinations in Parkinson’s, and how you can take part in the TOP HAT study at sites across Scotland. Feel free to invite others who may be interested to attend, too! |