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Social Care in Scotland – what do people with Parkinson’s and their families need?

As you may know, the Scottish Government is currently consulting on establishing a National Care Service for Scotland, and the opportunity to influence what happens will extend into next year.  We have been asked by Parkinson’s UK Scotland to circulate this information. We really do encourage you to read the information and to undertake the surveys below.

“The proposals for the National Care Service will mean big changes for social care in Scotland – and for aspects of the NHS too.  It is really important that we hear from as many people with Parkinson’s – and their family and friends – as possible. We want to know what you think of the proposals and we will use your responses to help us respond to the Government’s plans and to make sure that we are reflecting the priorities of people with Parkinson’s.

We know that many people with Parkinson’s already use social care support – including care at home, short breaks, supported housing and care homes – to live with their Parkinson’s. There are some really great examples of this working well, but we know that too many individuals with Parkinson’s, their partners, families and other supporters face considerable issues with the current system.

We have produced two versions of the survey – please choose the version which is best for you:

The full version, which should take about 20 minutes to complete, goes into more depth and includes more detail.

The shorter version should take you about 10 minutes.

Whichever survey you are able to complete, your views are hugely important to us and we would love to hear from you.

Both forms include spaces for you to share more information or comments and we would love to hear what you think of the proposals for the National Care Service. We may wish to use some of these comments in our response to the consultation and in Parkinson’s UK materials. If you would prefer us not to use your comments, please use the opt-out box on the form (question 3). We will never use your name or any identifying details”.

If you would also like to reply to the government consultation directly you can find it here

If you have comments you want to pass on directly, please email Tanith Muller or Jenny Willmott


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