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Request for Photos Relating to Living with Parkinson’s

Penny Stone is the song leader running one of our singing groups here in Edinburgh.

Before the last World Parkinson’s Congress gathering in Japan, the singing group and Penny wrote a song together exploring some of the shared experiences of people in the group living with Parkinson’s and their partners, as well as the shared experience of singing together.

They were joint winners in the song writing competition that year, and now we are in the process of making a video to illustrate it.  And that is where you could potentially help – whether or not you are in the singing group.  If you have Parkinson’s, then your contribution would be so welcome.

Penny is asking you to share photos that illustrate your experiences of living with Parkinson’s. Any photo that for you speaks of your experience is welcome. And if you want to add your voice to the video, that is possible too.

All the info on how to participate is here

We have added below the song lyrics, in case they spark any ideas for you. If you have any questions, please contact Penny

Photographs and singing/videos are welcome to be submitted until March 21st 2022. If it’s easier to send a picture via WhatsApp, just send an email to Penny who will then give you her mobile number.

It will be really fantastic to see the world through your eyes, through your photographs.


These buttons and laces they drive me insane,
I’m going to be late, we’ll be late again.
We’re a little unsteady, we’re a little unsure,
But there’s hope in our hearts, that we’ll see a cure.

Side by side we’re singing in harmony,
Side by side, together in tune.
Side by side we’re singing in harmony,
Together in tune.

Singing gives me freedom to let myself go,
To visit all the places that I used to know.
We’re living our lives as we’ve always done,
With our backs to the wall and our face to the sun.

Side by side we’re singing in harmony,
Side by side, together in tune.
Side by side we’re singing in harmony,
Together in tune.

This Parkinson’s mask may hide me,
Outside I’m frozen, but inside I’m free.
Through summers and winters, and years that go by,
We’re still who we were, still determined to fly.

Side by side we’re singing in harmony,
Side by side, together in tune.
Side by side we’re singing in harmony,
Together in tune.

 

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