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Clinical Trials: Volunteers Urgently Needed

We have received a communication from Parkinson’s UK outlining concerns that some research projects may have to be suspended if they cannot get enough recruits.  This can sadly mean important new treatments could be delayed by years, or risk never being made available at all.

So please, if you have Parkinson’s consider either of the two trials below:


Exploring a new drug to slow progression in newly diagnosed people with Parkinson’s

The pharmaceutical company UCB, is investigating how effective and safe a new oral drug is for people with Parkinson’s who have been diagnosed within the last 2 years.

The aim of the research is to understand the effect of the treatment on the progression of Parkinson’s.

Who do the researchers need?

  • 450 people diagnosed with Parkinson’s in the past 2 years
  • between 40-75 years of age
  • who have not taken drug treatments for their Parkinson’s (if you have taken a drug for less than 1 month you will still be eligible)
  • who can travel to a study site in Glasgow, London (Marylebone and Tooting) or Plymouth

 

What is involved?
You will be asked to visit a study site 16 times over the space of 1.5 years, where you will be given either the active drug or a placebo drug. 3 of these visits can take place at your home. The study will involve a variety of investigations at each visit, including an MRI scan if you have not had one in the past 6 months.

Your expenses will be reimbursed for your participation in this research.

For more information, please read the study guide and leaflet before 30 September 2022.

Find Out How to Take Part


Can a wrist worn device help improve some symptoms of Parkinson’s? 

Professor Richard Walker and his research team from Northumbria Healthcare NHS Foundation Trust, Northumbria University and Newcastle University are looking for people with Parkinson’s across the UK, to help shape the design of a wrist worn device to assist with day to day life, including the prompting of swallowing and reduction of drooling. 

Who do the researchers need?

  • 2700 people with Parkinson’s who have access to a smartphone (they don’t need to experience drooling) 
  • 300 people who experience problems with drooling

 

What is involved? 
Participants will be given the wrist worn device to use at home. You will be asked to give feedback to the research team about any problems and suggestions for improvement. Those who experience drooling will be included in a separate trial of the device to see if it also helps with this symptom. 

Participants will be able to keep the wrist worn device after the trial has completed. 

For more information please read the Participant Information Sheet before 31 January 2023.  

 Read More and Register Here

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