Privacy Policy

The information we collect about you, our security agreement and your rights.

Parkinson’s UK Edinburgh and Lothian Branch (the “Branch”, “us” or “we”) is committed to preserving your privacy. Please read the following privacy policy to understand how we use and protect the information obtained from those visiting and using the Branch’s website and its subdomains (the “website”).

By using the Branch’s website you consent to the collection, retention and use of your personal information in accordance with the terms of this policy.

Information we collect

  • Personal details (such as your name, contact details and email address) which you provide by registering with us or submitting an enquiry via the website.
  •  Your responses to surveys which we ask you to complete for research purposes.
  • How you use the website and any other information you post, email or otherwise send to us

The information thus collected is held securely in a membership database which is maintained by the Branch membership secretary. The information it contains is used to allow us to circulate the Branch newsletter, to notify you of Branch activities and to manage our records of membership.

In terms of the General Data Protection Regulations (GDPR 2018) our lawful basis for holding and using this data is that it is in the legitimate interests of the Branch and its members: we will use the data only in the ways you would expect, to run the Branch and support its aims. Separate e-Privacy Regulation (ePR, 2018) requires us to establish your explicit consent to make use of email to contact you about matters of interest; you can choose to withdraw that consent at any time, using the withdrawal form on our website.


Our website uses cookies to distinguish you from other users of the website. A cookie is a small file of letters and numbers that is stored on your device.

The cookies set may obtain information about you, your computer, your use of our website and your general internet usage.

IP Addresses

We may collect information where available about your IP address, operating system and browser type. This is data about users’ browsing actions and patterns. It is used to inform improvements to the website, for system administration, and to report aggregate information to third parties.


We employ security measures to protect your information from access by unauthorised persons and against unlawful processing, accidental loss, destruction or damage.

Unfortunately, the transmission of information via the internet is never completely secure. Although we will do our best to protect your personal data, we cannot guarantee the security of your personal or other data transmitted to our website. Any transmission is at your own risk.

Storage of your information

Once we have received your information, we will use strict procedures to prevent unauthorised access.


Where we have given you (or where you have chosen) a password which enables you to access certain parts of the Site, you are responsible for keeping the password safe and secure. You must not share passwords with anyone.

How we use your information

We use your information to:

  • Enable us to supply you with the services and information which you have requested
  • Ensure that content from the Website is presented effectively for you and your computer
  • Analyse the information we collect so that we can administer, support and develop the website
  • Provide you with information, products or services that you request from us or which we feel may interest you, unless you have indicated otherwise

We may contact you by post, telephone or fax as well as by email and text message. If you change your mind about being contacted in the future by any of these means then please let us know by getting in touch with the Records Management Section.

Online transactions

All payment transactions will be encrypted. Areas of the website that process online transactions make use of – and transfer data to – third party software and service providers.

All third-party software and service providers that we use are compliant with the relevant Payment Card Industry standards.

Payment card data security standards

Your rights

You have the right to ask for a copy of the information held by us about you in our records free of charge.

How to make an information request

If any information held by us about you is incorrect, you have the right to ask for this to be corrected and updated. Please help us keep our records updated by informing us of any changes to your email address and other contact details. Follow this link:

Update your personal information

You have the right to ask us not to process your personal data for marketing purposes. We will usually inform you (before collecting your personal data) if we intend to use your personal data for such purposes or if we intend to disclose your information to any third party for such purposes.

You can exercise your right to prevent such processing by checking certain boxes on the forms we use to collect your personal data. You can also exercise the right at any time by contacting the Records Management Section:

Records Management,
Parkinson’s UK Edinburgh Branch,
PO Box 17482,
Edinburgh EH12 1NQ.
Tel: 07594 481175

Third party websites

The website may, from time to time, contain links to and from the websites of third parties. If you follow a link to any of these websites, please note that these websites have their own privacy policies and that we do not accept any responsibility or liability for these policies. Please check these policies before you submit any personal data to these third party websites.

Changes to our privacy policy

We may amend this policy from time to time. If we make any substantial changes we will notify you by posting a prominent notice on the website.

Make an enquiry

If you have any queries concerning the information we hold about you or this privacy policy, or any questions on our use of your information then please contact the Records Management Section.


This article was published on April 26th 2018